Game Time

Today is Tuesday, December 3, 2013. Transplant Day. As I wait in my room with my fiancé, I think about how lucky I am to have such loving and supportive people around me. Although, I have told my fiancé, Scott, to go home, instead of staying here over night, he is too stubborn and won’t listen to me. I told him he won’t get any sleep, especially tonight because it is a critical time where nurses will be in and out of our room often to check on me. But, he insists and I can’t complain… I’m just grateful to have him by my side.

Thinking positive thoughts, wish all the best for my brother, my hero,  who has sacraficed a great deal for me… I only hope I can repay him back in some way, and I’ll sure as hell try my best when I see him again and with him literally being a part of me.

So Close….. Yet So Far….

So today is November 7th….

NO surgery.

In the past 3 weeks I have been busy with my Plasmapheresis and getting everything scheduled for my transplant today. Unfortunately, the last two treatments out of the 6, seemed to not have done much in lowering my titer count.  If you don’t like blood, I suggest you don’t look further into this entry.

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These pictures aren’t all that bad to me but I know some of my friends can’t stand the sight of blood.  These are a few pictures from my Plasmapheresis treatments.  A catheter was inserted on Friday, October 25th… probably not the most fun I’ve had, but it wasn’t too bad.  My neck was just really sore after they inserted it and sleeping was a bit difficult the first couple of nights.  Felt like someone punched me really hard in the neck.  After 3 treatments, my neck seemed to be pretty much fine and the treatments are pain free.

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image_1My machine.

image_5My fabulous fashion statement.

Treatments took about a couple hours the first two times, and each time after was shorter.  The very last one was about 50 minutes.

So, after preparing for the past few months for this transplant to take place today, I was told yesterday that my titer count was not low enough.  Which will result in most likely more treatments and a new surgery date of… December…. most likely in the beginning of December.  As much as I want to be furious and upset, and all the emotional frustration that I am experiencing right now, it doesn’t make sense to cry about it.  It is better to be safe than sorry, and to make sure everything is done correctly in order to have a successful surgery.  After all, I am extremely lucky to be receiving a kidney as quickly as I am.  A month is nothing compared to people who have been waiting 10+ years for a kidney.

For all my survivors out there, keep your head up and stay strong!

“A strong person knows how to keep their life in line.  With tears in their eyes, still manages to say, ‘Nah, I’m fine.'” – Unknown