I received my lab results from last week:
Although, my GFR (Glomerular Filtration Rate) is still low, it went from 13 to 14! After over a year of my GFR getting worse, and my creatinine getting worse, I’m amazed that my GFR actually went up and my creatinine, even if it is only a tiny bit, went down! I apologize for my enthusiasm, but it’s the little things like this that sure do brighten up my day. You have to always look at the positive and stay positive because even if doctors tell you one thing, it is YOU, YOURSELF, that knows YOU best. It’s important to be informed, to keep track of your blood results, and know what everything means as well as the reasons as to why you are taking each type of medication. Do not expect doctors to be your Mommy or Daddy who will always look after you. You and only YOU can look out for the best for yourself.
If you were diagnosed at a young age, like myself, be sure to know how to read your blood lab results. I was diagnosed at 10-years-old and yet none of my doctors told me what GFR meant until maybe about 10 years later. I had asked before and one of my doctors would say, “You don’t need to worry about it.” My doctor did not even tell me when I would be able to get on the kidney transplant waiting list (you are eligible to be on the waiting list when your GFR is 20 or below), and about half a year had gone by, when I was eligible a half a year ago. Luckily, if you have the blood test results of when your GFR was 20 or below, you can still submit that report and it will still be counted towards your time accumulated. I do not blame my doctor entirely, it is my own fault for not asking again and I should know better than to expect my doctor to follow up on everything. Just remember to always be PROACTIVE.
And remember to smile, because it really is the little things that count. Have a great week and don’t let your Monday make you feel like this:
P.S. Yes, you did learn something else about me, I am not African American. (See above).