First, I’d like to say Happy Thanksgiving to everyone! It’s been a rough week with my Plasmapheresis treatments and a bit of a hiccup last night.
Yesterday, my blood cell count was really low and they said I have severe anemia, in which I would need a blood transfusion. Because there’s no way to get every single drop of blood back into my body from the treatments, and I have been doing the treatments everyday, it’s not a surprise that I was going to need a blood transfusion. After my Plasmapheresis yesterday at 1pm, I ended up staying at the hospital until 11pm last night and had my next treatment this morning. I’m a bit exhausted but found out good news from my nurse this morning that my titer count is low and at the level it should be and my blood cell count went back up. My GFR went down to 8, but everything is going as planned and I have 4 more treatments to go.
IV for my blood transfusion
My lovely bag of Blood type O+
There are so many things to be thankful for, it’d take forever to list… be grateful for your health, your friends, your job, the roof over your head, the opportunities you are given and of course your family. I am forever grateful/fortunate for the love and support of my family, and the love of my life…with them I am never lost.
I am also thankful for the Friends Thanksgiving Marathon that was on while I was doing my Plasmapheresis 🙂
I hope you all have a wonderful Turkey Day! Cherish every smile/laughter/hug/moment and live for TODAY!
“It’s not what’s on the plate that matters… it’s what’s on the chairs.”
So today is November 7th….
In the past 3 weeks I have been busy with my Plasmapheresis and getting everything scheduled for my transplant today. Unfortunately, the last two treatments out of the 6, seemed to not have done much in lowering my titer count. If you don’t like blood, I suggest you don’t look further into this entry.
These pictures aren’t all that bad to me but I know some of my friends can’t stand the sight of blood. These are a few pictures from my Plasmapheresis treatments. A catheter was inserted on Friday, October 25th… probably not the most fun I’ve had, but it wasn’t too bad. My neck was just really sore after they inserted it and sleeping was a bit difficult the first couple of nights. Felt like someone punched me really hard in the neck. After 3 treatments, my neck seemed to be pretty much fine and the treatments are pain free.
My fabulous fashion statement.
Treatments took about a couple hours the first two times, and each time after was shorter. The very last one was about 50 minutes.
So, after preparing for the past few months for this transplant to take place today, I was told yesterday that my titer count was not low enough. Which will result in most likely more treatments and a new surgery date of… December…. most likely in the beginning of December. As much as I want to be furious and upset, and all the emotional frustration that I am experiencing right now, it doesn’t make sense to cry about it. It is better to be safe than sorry, and to make sure everything is done correctly in order to have a successful surgery. After all, I am extremely lucky to be receiving a kidney as quickly as I am. A month is nothing compared to people who have been waiting 10+ years for a kidney.
For all my survivors out there, keep your head up and stay strong!
“A strong person knows how to keep their life in line. With tears in their eyes, still manages to say, ‘Nah, I’m fine.'” – Unknown